23andMe is partnering with drug giant GlaxoSmithKline to use people’s DNA to develop medical treatments.
…If a person’s DNA is used in research, that person should be compensated, said Peter Pitts, president of the Center for Medicine in the Public Interest.
“Are they going to offer rebates to people who opt in, so their customers aren’t paying for the privilege of 23andMe working with a for-profit company in a for-profit research project?” Pitts said to NBC.
In addition, even though 23andMe gets the consent of its customers to use their genetic data, it’s unlikley that most people are aware of this.
…The new collaboration isn’t the first time 23andMe’s vast pool of genetic data has been mined by scientists. The San Francisco startup has already published more than 100 scientific papers based on its customers’ data, according to yesterday’s blog post, by Anne Wojcicki, 23andMe’s co-founder and chief executive. In 2015, the company launched 23andMe Therapeutics, which focuses on developing “novel treatments and cures based on genetic insights from the consented 23andMe community,” Wojcicki wrote.
23andMe has more than 5 million customers worldwide who have had their DNA analyzed for ancestral data. People who would like to close their 23andMe accounts can go here, but the company notes that “any research involving your data that has already been performed or published prior to our receipt of your request will not be reversed, undone, or withdrawn.”
Did anyone with a brain not see this slimey corporate douchebaggery coming from miles away???!